Feb. 15, 2023 — Gene therapies have the power to cure serious, even fatal, diseases. Yet what captures public attention is often not the transformative effects but the enormous price tags. 

At $3.5 million, Hemgenix, the new gene therapy for hemophilia B, has recently been named the most expensive drug on the planet, unseating another gene therapy, Skysona.

“I didn’t believe the prices we’re seeing now would ever happen,” says Colin Young, PhD, director of drug development pipeline research at Tufts Medical Center. “I’m continually amazed every time a new price comes out.”

Hemgenix is record-setting, but hardly an anomaly. Skysona, a treatment…


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