By Nicole Creech, as told to Hallie Levine

When I was diagnosed with pulmonary hypertension (PH) at age 36, I was terrified.

But then I remembered this wasn’t my first rodeo: I was born with sickle cell disease, and doctors said I wouldn’t live past the age of 15. I was well versed on how to live with an ongoing and potentially deadly condition.

I’m 49 now. Here’s my story.

A Delayed Diagnosis

Like many other people with PH, I went undiagnosed for several years. I had really strange symptoms such as shortness of breath and fatigue that would just come out of nowhere. I’d…


By prebo

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