By Nicole Creech, as told to Hallie Levine
When I was diagnosed with pulmonary hypertension (PH) at age 36, I was terrified.
But then I remembered this wasn’t my first rodeo: I was born with sickle cell disease, and doctors said I wouldn’t live past the age of 15. I was well versed on how to live with an ongoing and potentially deadly condition.
I’m 49 now. Here’s my story.
A Delayed Diagnosis
Like many other people with PH, I went undiagnosed for several years. I had really strange symptoms such as shortness of breath and fatigue that would just come out of nowhere. I’d…